As the national peak body, Rare Voices Australia lodges Submissions in response to the policies, processes and systems that impact Australians living with a rare disease.
Action Plan Pillar: Care and Support
Rare Disease Disability Advocacy
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Updated: 5 June, 2026
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Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you.  See our Terms of Use for more information.
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