As the national peak body, Rare Voices Australia lodges Submissions in response to the policies, processes and systems that impact Australians living with a rare disease.

Previous Submissions – Action Plan Pillar: Research and Data

2025

Medical Research Future Fund – Missions Program Evaluation
Draft Statement on Consumer and Community Involvement in Health and Medical Research
National Statement on Ethical Conduct in Human Research 2025

2023

Future Governance and Administration of Australian Health and Medical Research Funding
Government Consultation on the Use of Genetic Testing Results in Life Insurance Underwriting
Response template for the proposed Interprofessional Collaborative Practice Statement of Intent public consultation
Australian Commission on Safety and Quality in Health Care’s Consultation on the Framework for Australian clinical quality registries Second Edition
The Special Commission of Inquiry into Healthcare Funding

2022

Australian Commission on Safety and Quality in Health Care’s National One Stop Shop single national Site-Specific Assessment (SSA) minimum core elements

2021

Australian Commission on Safety and Quality in Health Care’s National One Stop Shop and the National Clinical Trials Front Door Proposal
Guiding Principles: Ensuring Culturally Safe Health Genomics in Partnership with Aboriginal and Torres Strait Islander Peoples

2019

Draft National CQR Strategy May 2019 – Attachment A
Draft National CQR Strategy May 2019 – Attachment B

2018

Medical Research Future Fund consultation to inform the second Australian Medical Research and Innovation Priorities 2018-2020
Submission to the Medical Research Future Fund consultation to inform the second Australian Medical Research and Innovation Priorities 2018-2020

2017

Funding for Research into Cancers with Low Survival Rates: Submission to the Senate Select Committee
National Health Genomics Policy Framework

Return to the Submissions page.