As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) coordinates an Education Program that includes resources designed to enhance the capacity and professionalism of rare disease groups/organisations. Delivered online and at in-person events, key focus areas include:

• Strong governance.
• Risk management.
• Effective advocacy and organisational strategy.
• Achieving better outcomes for a group’s/organisation’s rare disease community.

The Australian Government’s National Strategic Action Plan for Rare Diseases (the Action Plan) identifies the importance of building the capacity of rare disease groups/organisations. The Action Plan is the first nationally coordinated effort to address rare disease in Australia.

RVA’s Education Program is a key benefit of being an RVA Partner group/organisation, alongside other benefits such as advocacy and strategy mentorship.

RVA Partner groups/organisations are welcome to suggest topics for possible inclusion in RVA’s Education Program. Send through your suggestions by completing this form.

RVA’s online education contains courses exclusively available to RVA Partner groups/organisations. Available 24/7, the website is updated with new resources on an ongoing basis. Information, links and resources are curated via a methodical and purposeful process.

If you are an RVA Partner group/organisation, login or register to access the courses below. You will receive a certificate after successfully completing a course.

RVA’s Education Program also includes resources to help build the capacity of the broader rare disease sector. RVA’s online education includes several courses for all stakeholders, including resources for health professionals.

• Rare Disease Disability Toolkit
• Aboriginal and Torres Strait Islander People Resource Collection
• Culturally and Linguistically Diverse Community Resource Collection
• Regional, Rural and Remote Community Resource Collection