As the national peak body, Rare Voices Australia lodges Submissions in response to the policies, processes and systems that impact Australians living with a rare disease.

Previous Submissions – Action Plan Pillar: Care and Support

Rare Disease Disability Advocacy

2025

NDIS Evidence Advisory Committee September 2025 Consultation
Review of the Disability Discrimination Act 1992 – Attorney-General’s Department
Standing Committee on Health, Aged Care and Disability: Inquiry into the Thriving Kids InitiativeStanding Committee on Health, Aged Care and Disability: Inquiry into the Thriving Kids Initiative
Standing Committee on Health, Aged Care and Disability: Inquiry into the Thriving Kids InitiativeStanding Committee on Health, Aged Care and Disability: Inquiry into the Thriving Kids Initiative
Registration of NDIS Participants Who Self-Direct Their Supports – NDIS Quality and Safeguards Commission 

2024

National Disability Insurance Scheme Pricing and Funding Arrangements
Department of Social Services National Carer Strategy Consultation
NDIS Provider and Worker Registration Taskforce 
Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability: Response to Recommendations
Joint Standing Committee on the National Disability Insurance Scheme: NDIS Participant Experience in Rural, Regional and Remote Australia
Community Affairs Legislation Committee Inquiry on the NDIS Amendment – (Getting the NDIS Back on Track No. 1) Bill 2024
Draft Lists of NDIS Supports – Department of Social Services
Response to the Draft National Carer Strategy – Department of Social Services
National Carer Strategy Consultation – Department of Social Services
Foundational Supports (General Supports) – Department of Social Services
Consultation on Proposed Changes to NDIS Act (Bill No.2) – Quality and Safeguarding Amendments – NDIS Quality and Safeguards Commission

2023

National Disability Insurance Scheme Independent Review
Capability and Culture of the National Disability Insurance Agency

2022

Capability and Culture of the National Disability Insurance Scheme
Second Submission: Joint Standing Committee on the National Disability Insurance Scheme (NDIS) — Current Scheme Implementation and Forecasting for the NDIS

2021

Interim Submission: Joint Standing Committee on the National Disability Insurance Scheme (NDIS) — Current Scheme Implementation and Forecasting for the NDIS
Joint Standing Committee on the National Disability Insurance Scheme Parliamentary Inquiry into Independent Assessments
National Disability Insurance Agency public consultation: access and eligibility policy with independent assessments
National Disability Insurance Agency public consultation: access and eligibility policy with independent assessments

Return to the Submissions page.