This guide is part of the nationally codesigned Rare Disease Disability Toolkit (the Toolkit). It is designed to help individuals living with rare disease disability, and those who support them, to travel by plane safely and confidently in Australia.

This resource includes a main guide and extra tools to help you speak up for yourself and use together with your support team.

• Guide: Navigating Air Travel with Rare Disease Disability (PDF)
• Fact Sheet: Medical Practitioner Letter – Air Travel with Rare Disease Disability (PDF)
• Checklist: Air Travel with Rare Disease Disability (PDF)
• Checklist: Air Travel for Rare Caregivers (PDF)
• Checklist: Air Travel and PEG Feeding (PDF)
• Checklist: Air Travel with Oxygen (PDF)
• Checklist: Disability Air Travel Complaint Process (PDF)
• Card: Airport Screening Notification Card (PDF)

Note: This resource is accurate at the time of publishing (February 2026). The information provided does not necessarily represent the views of Rare Voices Australia (RVA) or imply endorsement. RVA is not liable for any loss, damage, or consequences arising from the use or misuse of this resource.

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Toolkit development was codesigned with people living with rare disease disability and facilitated by RVA. RVA is the national peak body for Australians living with a rare disease.

The Toolkit was funded by the Australian Government through the Peer Support and Capacity Building grant for the National Disability Insurance Scheme (NDIS) as part of the Rare Disease Disability Project.