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RVA News

  • Published On: 2 March 2017

    Family of Young Cowboy with Rare Condition Call for Funding of Lifesaving Treatment

    Brave little Beau Cosgrove’s face lights up when he reaches for his beloved cowboy hat...

  • Published On: 25 February 2017

    Childhood Stroke Victim Fears Medication Subsidy Cuts Leave Her at Risk

    Sofia Belmonte was just eight years old when she had a stroke in 1978...

  • Published On: 7 September 2015

    Rare Disease Articles – Australian Family Physician

    Rare Voices Australia is thrilled to see the Australian Family Physician (published by The Royal Australian College of General Practitioners) focus on Rare Diseases, unexplained illness...

  • Published On: 1 September 2015

    A Powerful Team: The Family Physician Advocating for Patients with a Rare Disease

    Rare diseases are characteristically difficult to diagnose and for the majority, there are no effective treatments or evidence-based management guidelines.

  • Published On: 11 May 2015

    The Forgotten Ones Photographic Exhibition

    A photographic exhibition opening in Sydney next week offers a unique perspective on what it’s like to grow up with someone living with a rare disease...

  • Published On: 1 June 2014

    Source Kids Magazine launches its First Edition

    Have you heard? Source Kids has just launched their First Edition of their glossy magazine – in both hardcover and online. It’s a wonderful resource that provides...