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RVA News

  • Published On: 21 March 2020

    Covid 19: Support for NDIS participants and providers through COVID-19

    Rare Voices Australia welcomes new measures announced to support NDIS participants and providers through...

  • Published On: 19 March 2020

    Covid 19: Access to Medicines

    Medicines Australia is advising that there are no anticipated shortages of medicines due to COVID-19. This means there is no need for anyone, including those living...

  • Published On: 18 March 2020

    COVID-19: Message from Rare Voices Australia

    You can read the first full message that RVA distributed regarding COVID-19 here...

  • Published On: 17 October 2019

    Outrage Over Brothers’ NDIS Payments

    Click here to read media generated following the research of the Disability & Rare Disease: Towards Person Centred Care for Australians with Rare Diseases report...

  • Published On: 29 June 2019

    Are Rare Diseases Being Overlooked by the NDIS?

    Rare Voices Australia’s (RVA) CEO, Nicole Millis, was interviewed by Claire Lindsay on ABC’s AM radio show. Click here to listen to the interview...

  • Published On: 9 February 2019

    Rare Voices Australia: Working to Make it Fair for Rare

    The burden of rare disease remains unacceptably high according to one national organisation fighting for the rights of nearly 2 million Australians...

  • Published On: 16 November 2018

    ‘Orphan’ Rare Diseases Focus of New Federal Government Support Plan

    The federal government will establish Australia’s first National Rare Diseases Framework and Action Plan to support people with rare conditions...

  • Published On: 15 November 2018

    Morrison Government announces support of National Rare Disease Framework

    Rare Voices Australia (RVA), the national peak not-for-profit organisation advocating for the nearly 2 million Australians living with rare disease...

  • Published On: 29 January 2018

    Life Saving Drugs Program Reform

    RVA is pleased to welcome the Turnbull Government’s announcement that ended the long-standing uncertainty regarding the Review of the Life Saving Drugs Program (LSDP)...

  • Published On: 23 January 2018

    Medical Research Future Fund (MRFF) Update

    RVA was in Sydney recently for the announcement of the successful recipients of the recent Medical Research Future Fund (MRFF) round targeting rare cancers...

  • Published On: 13 June 2017

    This Little Boy Can Finally be a ‘Typical Boy’ Thanks to This Drug

    Little Beau Cosgrove was born with the Morquio A illness which affects every part of his body except his brain. There are only 21 known cases...

  • Published On: 22 May 2017

    New Answers for Kids with Inherited Kidney Disease

    A new gene behind a rare form of inherited childhood kidney disease has been identified by a global research team...