Categories

  • Published On: 23 February 2015

    Rare Disease Day 2015

    Rare Voices Australia calls for a National Plan to reduce the suffering of an estimated 2 million Australians...

  • Published On: 15 February 2015

    National Plan Engagement Roadshows

    Rare Voices Australia is advocating as its number one priority for Australia to adopt a National Rare Diseases Plan. Over the past two years extensive...

  • Published On: 15 June 2014

    Graeme Innes Speaks on Access to Justice for People with Disabilities

    are Voices Australia attended the public RightsTalk discussion – “Balancing the Scales of Justice” presented by Graeme Innes, Commissioner for Disabilities...

  • Published On: 1 June 2014

    Source Kids Magazine launches its First Edition

    Have you heard? Source Kids has just launched their First Edition of their glossy magazine – in both hardcover and online. It’s a wonderful resource that provides...

  • Published On: 8 January 2014

    Rare Sweet Day for Rhiannen Sugars

    Rhiannen Sugars wants people to know that February 28 is Rare Disease Day, a relatively new way of raising awareness of the many complex and mysterious medical conditions...

  • Published On: 14 December 2013

    Un-Doctored

    RVA Board Director Dr Tracy Dudding recently attended the Royal College of Pathologists of Australasia’s Pathology Update. Professor John Christodoulou, a Director of the Western Sydney Genetics Program...

  • Published On: 30 November 2013

    Genetic Revolution Offers Hope

    The paradox about rare or ‘orphan’ diseases is that, collectively, they are not uncommon. There are thousands of identified rare diseases affecting about 350 million people worldwide. This includes...

  • Published On: 31 October 2013

    Woman Speaks Out for People with Rare Diseases

    New RVA supporter, Kath of Deer Park VIC, talks of her daily struggle living with a rare disease and the hope that RVA brings to her and her family. The Brimbank mother was struck down...