A second and final newborn screening consultation workshop was held on 12 August 2015, to discuss the development of a national policy framework for...

Rare Voices Australia is thrilled to see the Australian Family Physician (published by The Royal Australian College of General Practitioners) focus on Rare Diseases, unexplained illness...

Rare Voices Australia launched the Parliamentary Friends of Rare Diseases in November 2014. RVA Patron, The Honorable Michael Kirby, welcomed Parliamentarians...

Rare diseases are characteristically difficult to diagnose and for the majority, there are no effective treatments or evidence-based management guidelines.

The Australian Government is inviting health consumers to contribute to the reform of the health system and delivering a Healthier Medicare. One of the priority...

RVA shares MDDA, PKU NSW and HCU’s encouragement by the recent public comment made by Federal Minister Sussan Ley stating they intend to take...

The RVA Rare Disease Summit presented a Draft Communique which is the key principles and objectives of a National Rare Disease Plan. RVA is calling for support from all Rare...

Great news for people living with undiagnosed rare diseases in Victoria. Premier Daniel Andrews MP has provided $25 million to develop a state-wide genomic sequencing program...

A photographic exhibition opening in Sydney next week offers a unique perspective on what it’s like to grow up with someone living with a rare disease...

The Rare Voices Australia Board of Directors met for their annual Strategy Planning Day at the Board of Trustees meeting room in the Female Orphan School, University of Western Sydney...

Rare Voices Australia hosted a Rare Disease Summit on Friday 27th and Saturday 28th March 2015 in Melbourne. A National Rare Disease Plan, Driving Collaboration...

A National Rare Disease Plan, Driving Collaboration, Driving Action, will be opened by Senator Richard Di Natale; one of many Parliamentary Friends of Rare Diseases...