Young Australians living with rare diseases defy the odds but need better support, expert says

Published On: 6 May 2021

Young Australians living with rare diseases can face significant social, employment and educational barriers in life.

Many can also experience isolation and exclusion from their peer groups.

But Basit Bahram is trying his best to overcome these challenges.

RVA’s CEO was interviewed by ABC News.

Click here to read the full article.

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Updated: 21 October, 2025

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Rare diseases typically display a high level of symptom complexity and variability. Individuals diagnosed with the same rare disease may be impacted differently and each person’s experience is unique.  Please seek support from qualified healthcare professionals to learn more about the most suitable care and support options for you.  See our Terms of Use for more information.

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Young Australians living with rare diseases defy the odds but need better support, expert says

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