Rare Voices Australia (RVA) values the importance of maintaining accurate RVA Partner group/organisation records.

Completing the forms below assists RVA in ensuring that our databases have the most up-to-date information about your group/organisation. This enables RVA to disseminate information to the most relevant contacts in your group/organisation.

Please note: we understand that not all groups/organisations will have a contact for each area listed below.

The Rare Disease Disability Network (RDDN) is a RVA led peer support and capacity building network for rare disease community-led groups/organisations and invited sector stakeholders. It will help to inform the Rare Disease Disability Project. Learn more at this webpage.