The nationally codesigned Rare Disease Disability Toolkit (the Toolkit): Rare Voices Australia (RVA) continues to promote the first round of Toolkit...

The nationally codesigned Rare Disease Disability Toolkit (the Toolkit): Rare Voices Australia (RVA) continues to promote the first round of Toolkit...

The nationally codesigned Rare Disease Disability Toolkit (the Toolkit): Rare Voices Australia (RVA) continues to promote the first round of Toolkit...

The first Australian Rare Disease Research Network (ARDRN) virtual meeting for 2026 was held in May. The ARDRN has grown to over 120 members, including...

Stakeholder Reference Group (SRG) members met for the second time this year in April. The SRG continues to provide lived-experience guidance for the Rare Disease Disability Project.

As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) acknowledges the Australian Government’s intent to...

Rare Voices Australia (RVA) continues to advocate for Australians living with rare disease disability through engagement in key disability reform initiatives...

Thank you to everyone who attended Rare Voices Australia’s (RVA) Rare Disease Day Parliamentary Event on 2 March 2026. Hosted by the Parliamentary Friends of Australians...

On 2 December 2025, Rare Voices Australia (RVA) facilitated the inaugural Rare Disease Disability Network Showcase (the Showcase) in Brisbane, ahead of the International Day of People...

Rare Voices Australia (RVA) continues to advocate for Australians living with rare disease disability through engagement in key disability reform initiatives...

Below are the updates for the Rare Disease Disability Project for October 2025...

Rare Voices Australia (RVA) has been engaging in several key disability initiatives throughout 2025 to advocate on behalf of Australians living with rare disease disability...