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RVA News

  • Published On: 9 June 2021

    Newborn Bloodspot Screening Update: Changes to the Assessment Process for Nominated Conditions

    The Department of Health has announced changes to the assessment process for nominated conditions conducted...

  • Published On: 31 May 2021

    Andrew Bannister wins the Masonic Care WA/Freemasons WA Community Service and Volunteering Award and the People’s Choice Award

    Rare Voices Australia (RVA) congratulates rare disease advocate, Andrew Bannister, who has been announced...

  • Published On: 27 May 2021

    Australian Clinical Trials Alliance: Have your say on secondary use of data in clinical research

    Interested in secondary use of data for Australian research? Invitation to take part in Australian Clinical...

  • Published On: 27 May 2021

    Victoria Enters Seven Day Lockdown

    From midnight 27 May 2021, Victoria will enter a seven day lockdown...

  • Published On: 14 May 2021

    United Nations General Assembly Resolution on Persons Living with a Rare Disease and their Families

    The global community of persons living with a rare disease, their families, and civil society organisations, with the support...

  • Published On: 13 May 2021

    MRFF Rare Cancers Rare Diseases Unmet Need grant open

    A new Medical Research Future Fund (MRFF) Rare Cancers Rare Diseases Unmet Need grant has opened...

  • Published On: 12 May 2021

    Federal Budget 2021-22 and Australians living with a rare disease

    On Tuesday 11 May 2021, Treasurer Josh Frydenberg announced the Morrison Government’s 2021-22 Federal Budget...

  • Published On: 20 April 2021

    Article Published in Journal of Paediatrics and Child Health

    Rare Voices Australia (RVA) Scientific and Medical Advisory Committee members, Kaustuv Bhattacharya, Yvonne Zurynski and Adam Jaffe...

  • Published On: 16 April 2021

    Compulsory NDIS Assessments Placed on Pause

    Senator the Hon. Linda Reynolds CSC, Minister for the National Disability Insurance Scheme (NDIS), has placed compulsory NDIS assessments on pause...

  • Published On: 24 March 2021

    COVID-19 Vaccination Rollout Information for Carers: What You Need to Know

    Rare Voices Australia (RVA) attended the COVID-19 response update for carers webinar on 23 March 2021. The webinar was hosted by Professor...

  • Published On: 10 March 2021

    Survey: Inform WA Health Department About Support Required by Rare Disease Community Groups

    In Western Australia, hundreds of peer support groups and other Non Governmental Organisations (NGOs)...

  • Published On: 12 February 2021

    Victoria Goes into Five Day Lockdown

    Victoria has entered into a five day lockdown due to a COVID-19 cluster that continues to grow from hotel quarantine...