This guide is part of the nationally codesigned Rare Disease Disability Toolkit (the Toolkit). It is for individuals and caregivers living with rare disability to use in healthcare settings. It may help you better understand what reasonable adjustments are, why they matter, and how you can ask for them.

This resource includes a main guide and extra tools to help you speak up for yourself and use together with your support team.

• Guide: Reasonable Adjustments in Healthcare: What Can I Ask For? (PDF)
• Checklist: My Healthcare Reasonable Adjustments: What Can I Ask For? (PDF)
• Checklist: My Hospital Reasonable Adjustments: What Can I Ask For? (PDF)
• Example Letter: Medical Practitioner Letter: Reasonable Adjustments in Hospital (PDF)

Note: This resource is accurate at the time of publishing (February 2026). The information provided does not necessarily represent the views of Rare Voices Australia (RVA) or imply endorsement. RVA is not liable for any loss, damage, or consequences arising from the use or misuse of this resource.

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Toolkit development was codesigned with people living with rare disease disability and facilitated by RVA. RVA is the national peak body for Australians living with a rare disease.

The Toolkit was funded by the Australian Government through the Peer Support and Capacity Building grant for the National Disability Insurance Scheme (NDIS) as part of the Rare Disease Disability Project.