The Rare Awareness Rare Education (RARE) Portal is Australia’s growing national resource for rare diseases. Customised for the Australian context, the RARE Portal houses current, reliable and straightforward rare disease information. Funded by the Australian Government, information, resources, and individual rare disease pages continue to be added to the RARE Portal over time. As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is leading the RARE Portal’s collaborative development.

The following links may take you to the information you are looking for. If you can’t find what you’re searching for listed below, additional resources are available on the RARE Portal.