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RVA News

  • Published On: 21 March 2020

    Covid 19: Support for NDIS participants and providers through COVID-19

    Rare Voices Australia welcomes new measures announced to support NDIS participants and providers through...

  • Published On: 19 March 2020

    Covid 19: Access to Medicines

    Medicines Australia is advising that there are no anticipated shortages of medicines due to COVID-19. This means there is no need for anyone, including those living...

  • Published On: 18 March 2020

    COVID-19: Message from Rare Voices Australia

    You can read the first full message that RVA distributed regarding COVID-19 here...

  • Published On: 26 February 2020

    New Plan for Grappling with Rare Diseases

    When Kane Blackman’s son started experiencing severe symptoms of an unknown condition, he was told his child was delayed and would eventually catch up...

  • Published On: 23 February 2020

    Rare Disease Day 2020: Far North Queensland Fun Run

    Rare Voices Australia (RVA) attended the Far North Queensland Fun Run in the lead-up to Rare Disease Day 2020 and were interviewed by Channel 7...

  • Published On: 17 October 2019

    Outrage Over Brothers’ NDIS Payments

    Click here to read media generated following the research of the Disability & Rare Disease: Towards Person Centred Care for Australians with Rare Diseases report...

  • Published On: 29 June 2019

    Are Rare Diseases Being Overlooked by the NDIS?

    Rare Voices Australia’s (RVA) CEO, Nicole Millis, was interviewed by Claire Lindsay on ABC’s AM radio show. Click here to listen to the interview...

  • Published On: 3 April 2019

    Federal Budget 2019-20 and Rare Disease

    On Tuesday evening, Treasurer Josh Frydenberg announced the Morrison Government’s 2019-20 Federal Budget. As a peak body, Rare Voices...

  • Published On: 9 February 2019

    Rare Voices Australia: Working to Make it Fair for Rare

    The burden of rare disease remains unacceptably high according to one national organisation fighting for the rights of nearly 2 million Australians...

  • Published On: 16 November 2018

    ‘Orphan’ Rare Diseases Focus of New Federal Government Support Plan

    The federal government will establish Australia’s first National Rare Diseases Framework and Action Plan to support people with rare conditions...

  • Published On: 15 November 2018

    Morrison Government announces support of National Rare Disease Framework

    Rare Voices Australia (RVA), the national peak not-for-profit organisation advocating for the nearly 2 million Australians living with rare disease...

  • Published On: 25 February 2018

    RVA Board of Directors Positions

    RVA currently has vacancies for volunteer directors on our Board. Board meetings are held via teleconference every 2 months and involve 1 to 2 hours of pre-reading...