Categories

News

RVA News

  • Published On: 9 August 2022

    Webinar for Health Consumers and Consumer Advocates with the Hon Mark Butler MP: Consumers Health Forum of Australia

    The Consumers Health Forum of Australia (CHF) hosted a webinar on Friday 5 August with the Hon Mark Butler MP...

  • Published On: 3 August 2022

    RVA Welcomes Announcement That Pharmaceutical Benefits Scheme Listed Treatment for Spinal Muscular Atrophy (SMA) Will Be Extended to Adults

    Rare Voices Australia (RVA) welcomes the Hon Mark Butler MP’s announcement that, from 1 August 2022, the Pharmaceutical Benefits Scheme...

  • Published On: 27 July 2022

    RVA Partner Organisations: November Mental Health First Aid Training Accreditation

    Rare Voices Australia (RVA) is working with Mental Health First Aid (MHFA) Australia to offer RVA Partner organisations the opportunity...

  • Published On: 26 July 2022

    Update: Australian Commission on Safety and Quality in Health Care’s National One Stop Shop and Clinical Trials Front Door

    For many people living with a rare disease, participation in clinical trials is the only way to access treatment...

  • Published On: 26 July 2022

    Update: Progress Towards a National Strategy for Australia’s Rare Metabolic Diseases Workforce

    In February 2022, Rare Voices Australia (RVA) and Equity Economics and Development Partners launched the Rare Metabolic Disease Workforce...

  • Published On: 22 July 2022

    RVA is Hiring: Education Project Officer

    Rare Voices Australia (RVA) is excited to be expanding our team! We are looking to recruit an Education Project Officer...

  • Published On: 30 June 2022

    RVA is Hiring: Communications and Administrative Officer

    Rare Voices Australia (RVA) is excited to be expanding our team! We are looking to recruit a communications and administrative all-rounder...

  • Published On: 29 June 2022

    National Disability Insurance Agency (NDIA) Community Update

    The National Disability Insurance Agency (NDIA) Co-design and Engagement Team would like to invite you to participate in their monthly...

  • Published On: 28 June 2022

    28 June is International Neonatal Screening Day

    Today (28 June) is International Neonatal Screening Day, a day that celebrates the birthday of Dr Robert Guthrie...

  • Published On: 20 June 2022

    Mental Health First Aid Training for Rare Voices Australia Partner Organisations

    Rare Voices Australia (RVA) is currently working on a mental health and wellbeing project based on recommendations in the National Strategic Action Plan...

  • Published On: 17 June 2022

    Queensland Government to Expand Its Newborn Screening Program to Include Spinal Muscular Atrophy (SMA) and Severe Combined Immunodeficiency (SCID)

    Rare Voices Australia (RVA) welcomes the Queensland Government’s announcement...

  • Published On: 31 May 2022

    RVA Education: The Changing Face of Newborn Bloodspot Screening – A Rare Disease Sector Forum

    Ahead of the Federal Election, RVA was excited to welcome the Australian Labor Party’s (ALP) commitment, if elected, to invest...