Categories

  • Published On: 24 April 2026

    Industry

    “A short note to congratulate you and your team on hosting a wonderful conference in Brisbane. My first Rare Voices Australia conference, but not my last. I learned so much about rare diseases, the research and collaboration that’s going on and the patient and persistent advocacy” Industry

  • Published On: 24 April 2026

    RVA Ambassador

    “I just left with such a buzz and so much joy. I can’t fault it. It was tiring and overwhelming but so fabulous.” RVA Ambassador

  • Published On: 24 April 2026

    Clinician Researcher 2

    “This was honestly one of the best conferences I have been to with a good mix of presentations, Q&A and highly interactive workshops. The Summit was also the perfect size—not too big and not too small. Large enough to have a diverse set of attendees but small enough that you had the opportunity to [...]

  • Published On: 24 April 2026

    Clinician Researcher

    “… two brilliant days at the National Rare Disease Summit in Brisbane, coordinated by the incredible Rare Voices Australia, with so many passionate contributions from the whole sector, patient groups, government, clinicians, researchers, industry. The meeting was a stark reminder that so much of the care and progress for people with rare diseases comes [...]

  • Published On: 24 April 2026

    RVA Partner 2

    “Felt so honoured to be on a panel and it has already been so beneficial to us so thank you again so very much for the opportunity. Enjoy some downtime after what was a brilliant few days.” RVA Partner (rare disease group/organisation representative)

  • Published On: 24 April 2026

    RVA Partner 1

    “Thank you for a wonderful day yesterday and congratulations on a fantastic event.” RVA Partner (rare disease group/organisation representative)