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RVA News

  • Published On: 20 June 2022

    Mental Health First Aid Training for Rare Voices Australia Partner Organisations

    Rare Voices Australia (RVA) is currently working on a mental health and wellbeing project based on recommendations in the National Strategic Action Plan...

  • Published On: 31 May 2022

    RVA Education: The Changing Face of Newborn Bloodspot Screening – A Rare Disease Sector Forum

    Ahead of the Federal Election, RVA was excited to welcome the Australian Labor Party’s (ALP) commitment, if elected, to invest...

  • Published On: 30 May 2022

    Rare Disease Registry Audit: Key Findings and Project Update

    The much-awaited key findings from the Australian Rare Disease Registry Audit project, led by Monash University registry experts...

  • Published On: 20 May 2022

    Launched: A Guide for Rare Disease Organisation Leaders in Australia

    Rare disease organisations are an important part of the Australian rare disease community. These organisations can understand, capture and communicate...

  • Published On: 4 May 2022

    RVA is Hiring: Project Officer – Mental Health and Wellbeing (Maternity Leave Position)

    Rare Voices Australia (RVA) is looking to hire a Project Officer – Mental Health and Wellbeing (Maternity Leave Position)...

  • Published On: 28 April 2022

    Meet Our 2022 Rare Voices Australia Ambassadors!

    In 2022, Rare Voices Australia (RVA) is celebrating 10 years of rare disease advocacy. RVA’s 10th Anniversary Ambassador Program (the Ambassador Program) is one of several initiatives...

  • Published On: 30 March 2022

    RVA Full Statement: Budget 2022-23 and Australians Living with a Rare Disease

    On Tuesday, 29 March 2022, the Hon Josh Frydenberg MP (Treasurer of Australia) announced the Morrison Government’s 2022-23 Federal Budget...

  • Published On: 2 March 2022

    Rare Voices Australia’s 10th Anniversary Ambassador Program

    In 2022, Rare Voices Australia (RVA) is celebrating 10 years of rare disease advocacy. Thank you to everyone who contributed to RVA’s work over the last decade...

  • Published On: 4 February 2022

    2022 Rare Disease Day Update and Media Pack

    Rare Disease Day will be marked on 28 February 2022. As reported in December eNews, Rare Voices Australia (RVA) has been actively contributing to the development of the global Rare Disease Day campaign...

  • Published On: 13 January 2022

    Expressions of Interest Sought: Rare Awareness, Education, Support and Training Stakeholder Reference Group

    Do you have lived experience of rare disease? Are you actively connected...

  • Published On: 16 December 2021

    Systemic National Disability Insurance Scheme Advocacy: National Disability Insurance Agency Roundtable

    Rare Voices Australia (RVA) has continued to actively advocate for systemic improvements to the National Disability Insurance Scheme (NDIS)...

  • Published On: 15 December 2021

    Board Positions Available: Rare Voices Australia

    Rare Voices Australia (RVA) is seeking non-executive directors to join the RVA Board. Successful applicants will bring experience, skills and capabilities that contribute to the governance of RVA...