The theme for the Partners in Patient Health Asia Pacific Forum 2015 was ‘Working Together With One Voice’. This is is the second event, which aimed to convene leading patient...

A second and final newborn screening consultation workshop was held on 12 August 2015, to discuss the development of a national policy framework for...

Rare Voices Australia launched the Parliamentary Friends of Rare Diseases in November 2014. RVA Patron, The Honorable Michael Kirby, welcomed Parliamentarians...

The Australian Government is inviting health consumers to contribute to the reform of the health system and delivering a Healthier Medicare. One of the priority...

RVA shares MDDA, PKU NSW and HCU’s encouragement by the recent public comment made by Federal Minister Sussan Ley stating they intend to take...

The RVA Rare Disease Summit presented a Draft Communique which is the key principles and objectives of a National Rare Disease Plan. RVA is calling for support from all Rare...

Great news for people living with undiagnosed rare diseases in Victoria. Premier Daniel Andrews MP has provided $25 million to develop a state-wide genomic sequencing program...

The Rare Voices Australia Board of Directors met for their annual Strategy Planning Day at the Board of Trustees meeting room in the Female Orphan School, University of Western Sydney...

Rare Voices Australia hosted a Rare Disease Summit on Friday 27th and Saturday 28th March 2015 in Melbourne. A National Rare Disease Plan, Driving Collaboration...

A National Rare Disease Plan, Driving Collaboration, Driving Action, will be opened by Senator Richard Di Natale; one of many Parliamentary Friends of Rare Diseases...

Rare Voices Australia calls for a National Plan to reduce the suffering of an estimated 2 million Australians...

Rare Voices Australia is advocating as its number one priority for Australia to adopt a National Rare Diseases Plan. Over the past two years extensive...