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RVA News

  • Published On: 5 April 2020

    NDIS: Priority Home Delivery Services

    From Monday 6 April, NDIS participants can purchase grocery items online to be delivered to their home...

  • Published On: 28 March 2020

    Covid 19: Medicine Supplies in Australia

    Medicines Australia (MA) is advising that Australia has sufficient supplies of medicines and are strongly discouraging the stockpiling or panic buying of medicines...

  • Published On: 25 March 2020

    COVID-19 updates from the National Disability Insurance Agency

    Here is a snapshot of the COVID-19 updates as of 25/3 from the National Disability Insurance Agency (NDIA)...

  • Published On: 23 March 2020

    Covid 19: Life Saving Drugs Program (LSDP)

    VA is liaising with our RVA Partners that represent members in their community who access the LSDP to ascertain the full potential impacts of COVID-19 on the LSDP...

  • Published On: 23 March 2020

    Covid 19: Priority Testing and Turnaround times

    RVA has reached out to all state Health Ministers and Chief Health Officers to request that they prioritise COVID-19 testing and turnaround times for people living...

  • Published On: 21 March 2020

    Covid 19: Support for NDIS participants and providers through COVID-19

    Rare Voices Australia welcomes new measures announced to support NDIS participants and providers through...

  • Published On: 19 March 2020

    Covid 19: Access to Medicines

    Medicines Australia is advising that there are no anticipated shortages of medicines due to COVID-19. This means there is no need for anyone, including those living...

  • Published On: 18 March 2020

    COVID-19: Message from Rare Voices Australia

    You can read the first full message that RVA distributed regarding COVID-19 here...

  • Published On: 17 October 2019

    Outrage Over Brothers’ NDIS Payments

    Click here to read media generated following the research of the Disability & Rare Disease: Towards Person Centred Care for Australians with Rare Diseases report...

  • Published On: 29 June 2019

    Are Rare Diseases Being Overlooked by the NDIS?

    Rare Voices Australia’s (RVA) CEO, Nicole Millis, was interviewed by Claire Lindsay on ABC’s AM radio show. Click here to listen to the interview...

  • Published On: 9 February 2019

    Rare Voices Australia: Working to Make it Fair for Rare

    The burden of rare disease remains unacceptably high according to one national organisation fighting for the rights of nearly 2 million Australians...

  • Published On: 16 November 2018

    ‘Orphan’ Rare Diseases Focus of New Federal Government Support Plan

    The federal government will establish Australia’s first National Rare Diseases Framework and Action Plan to support people with rare conditions...