Categories

  • Published On: 24 July 2025

    RVA eNews July 2025

  • Published On: 30 June 2025

    Rare Disease Disability Project News: June 2025

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is leading the Rare Disease Disability Project (the Project)...

  • Published On: 27 June 2025

    Progressing Implementation of the National Strategy for Australia’s Rare Metabolic Disease Workforce: Exciting Developments for Metabolic Medicine

    The Royal Australasian College of Physicians (RACP), together with the Human Genetics Society of Australasia (HGSA)...

  • Published On: 24 June 2025

    RARE Portal eNews June 2025

  • Published On: 24 May 2025

    Rare Disease Disability Project News: May 2025

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is leading the Rare Disease Disability Project (the Project)...

  • Published On: 24 May 2025

    RVA eNews May 2025

  • Published On: 5 May 2025

    Rare Disease Disability Project: Virtual Kitchen Table Peer Support Sessions Commencing in May

    As part of the Rare Disease Disability Project (the Project), Rare Voices Australia (RVA) is facilitating virtual kitchen table peer support sessions. Two sessions will be held...

  • Published On: 24 April 2025

    Rare Disease Disability Project News: April 2025

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is leading the Rare Disease Disability Project (the Project)...

  • Published On: 24 April 2025

    RVA eNews April 2025

  • Published On: 23 April 2025

    Released: National Statement on Ethical Conduct in Human Research 2025

    The revised National Statement on Ethical Conduct in Human Research 2025 (National Statement) was published on 6 March 2025...

  • Published On: 27 March 2025

    National Public Consultations on the Draft Quality Standards and Accreditation Scheme for Human Research Ethics Committees

    Imagine a future where Australia is a leading destination for health and medical research. Have your say on improving ethics review processes...

  • Published On: 27 March 2025

    Expressions of Interest: Rare Disease Disability Project Stakeholder Reference Group

    As the national peak body for Australians living with a rare disease, Rare Voices Australia (RVA) is leading the Rare Disease Disability Project (the Project)...