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RVA News

  • Published On: 25 January 2021

    “Together we are Stronger”: Transforming Uncertainty Into Hope

    Learn how one family’s 14-year diagnostic odyssey led to the birth of SCN2A Australia...

  • Published On: 21 January 2021

    WA Department of Health Stakeholder Consultation Focus Groups

    The Western Australia Department of Health, Office of Population Health Genomics (OPHG) is currently reviewing the supports, services and systems available to...

  • Published On: 15 January 2021

    RVA is Hiring: Research & Evaluation Officer

    The Research and Evaluation Officer will play a key role in facilitating the collaborative implementation of the National Strategic Action Plan for Rare Diseases...

  • Published On: 8 January 2021

    RVA Education Webinar: NDIS Parliamentary Inquiry and Consultation Processes

    Rare Voices Australia (RVA) welcomes the opportunity to provide input from a rare disease perspective into changes...

  • Published On: 8 January 2021

    Greater Brisbane Goes Into 3-day Lockdown

    Greater Brisbane will go into lockdown for three days from 6pm Friday 8 January, while contact tracers work to ensure the UK strain of COVID-19 is not circulating in the community...

  • Published On: 21 December 2020

    COVID-19 Outbreak in NSW

    A COVID-19 outbreak on Sydney’s northern beaches has led to fresh warnings around the country and new restrictions being introduced in New South Wales...

  • Published On: 21 December 2020

    RVA Education: National Disability Insurance Agency Public Consultations Guide

    he National Disability Insurance Agency (NDIA) would like to hear from you regarding the changes they are making to the NDIS...

  • Published On: 27 November 2020

    RVA Poster Presentation for HGSA Virtual Conference 2020

    Rare Voices Australia (RVA) attended the Human Genetics Society of Australasia’s (HGSA) Virtual Conference on 24 and 25 November 2020. RVA was pleased to present...

  • Published On: 19 October 2020

    Victoria’s Restrictions to be Eased

    Metropolitan Melbourne and regional Victoria’s restrictions will be eased from 11:59pm 18 October 2020...

  • Published On: 8 October 2020

    Hope on the Horizon

    Imagine your child is showing symptoms that confound doctors. You see expert after expert, getting test after test...

  • Published On: 7 October 2020

    Amplifying the Patient Voice in Rare Disease Access

    Rare disease patients are organising like never before, turning up the publicity volume and becoming ever more active in driving cures in the lab and even the boardroom...

  • Published On: 7 October 2020

    Federal Budget 2020-21 and Rare Disease

    On Tuesday evening, Treasurer Josh Frydenberg, announced the Morrison Government’s 2020-21 Federal Budget. As the peak body for Australians living with a rare disease...