Rare Disease Disability Project News: January 2026

Below are the updates for the Rare Disease Disability Project for January 2026.

Virtual Kitchen Table Peer Support Sessions

The next Virtual Kitchen Table Peer Support Sessions will be held on Wednesday, 11 March 2026. These sessions are open to people:

• Living with rare disease disability.
• Caring for others living with rare disease disability.
• Who don’t have a formal role in any RVA Partner group/organisation*.

One session will be held for people living with rare disease disability and a separate session will be held for caregivers of people living with rare disease disability.

Session Details

Date: Wednesday, 11 March 2026

Registration

Session for people living with rare disease disability (12pm – 1pm AEDT)

Session for caregivers of people living with rare disease disability (8pm – 9pm AEDT)

The topic for these sessions is, Preparing for natural disasters and emergencies with rare disease disability.

Come and share any hints and tips, ideas and learn from others and connect through this peer support session.

*Note: If you are an RVA Partner representative, you are welcome to join the Rare Disease Disability Network instead. Email RVA to join: disabilityprojects@rarevoices.org.au