Communique: Long-Term Strategic Guidance of Australia’s Digital Health and Health Data Infrastructure

On 5 June 2025, RVA attended a workshop co-hosted by Research Australia and Digital Health CRC. The workshop brought together key stakeholders from across the health and medical data, research and innovation ecosystem, including government, academia, peak bodies, and industry. A brief overview of the workshop is available on Digital Health CRC’s website.

Rare Voices Australia’s Contribution

RVA provided input on behalf of Australians living with a rare disease at the workshop and to the draft Communique that was distributed post workshop. RVA endorsed the final Communique, which was published in July. RVA will now continue to be involved in the next steps to help progress this work, including reconvening with the group that attended the initial workshop to continue the conversation.