Expressions of Interest Sought: 2025-27 Rare Voices Australia Ambassador Program
In 2020, Rare Voices Australia (RVA) launched our inaugural RVA Ambassador Program to coincide with our 10th anniversary year. The initiative continued beyond 2020 due to popular demand and has since gone from strength-to-strength. The RVA Ambassador Program provides people living with a rare disease and those with professional experience of working with rare diseases with the opportunity to share their experiences with the broader rare disease sector.
Images (left to right): RVA Ambassadors at a Parliamentary Event and RVA Ambassadors at the Gala Event 10th anniversary celebrations at the 2022 National Rare Disease Summit
To continue promoting diversity and showcasing the breadth of rare diseases and people’s unique stories, we will be refreshing our RVA Ambassador Program in 2025 through an expression of interest (EOI) process. We’re keen to hear from a broad range of Australians living with a rare disease, including carers; family members; those living with an undiagnosed rare condition; bereaved parents; people living with a disability; and so on.
Important: Please note that this is a volunteer role and that RVA does not have funding to provide remuneration to RVA Ambassadors.
Thank you to our inaugural ambassadors, listed below, for their invaluable contributions since being appointed official RVA Ambassadors.
- Katie Alexander
- Andrew Bannister
- Lachy Beckett
- Ryan Brown
- Ebony Callaghan
- Nathan Charles
- Tim Fulton
- Tammie Rees
- Beck Webber
- Renae Wood
