RARE Helpline: Call 0499 549 629
Please contact the RARE Helpline by visiting this page on the Rare Awareness Rare Education (RARE) Portal or calling 0499 549 629.
The RARE Helpline provides service navigation support to Australians living with a rare and complex disease.
Note: RVA staff cannot provide medical advice. For other medical matters, contact your medical and/or health team.
Emergencies
In the event of an emergency, call an ambulance on 000 or these support lines:
General Contact Information
Postal: PO Box 138, Mentone, Victoria, 3194
General enquiries: +61 (0)497 003 104
Office hours: Monday to Friday 9.00am – 5.00pm (AEST)
Media Enquiries
Please contact communications@rarevoices.org.au
Feedback/Complaints
If you have specific feedback, we encourage you to communicate directly with the RVA team member you interacted with. If you prefer to send your feedback in writing, or would like to make a complaint, we encourage you to email admin@rarevoices.org.au with the subject line ‘Feedback/Complaint’. Your feedback is important to us and assists RVA in reviewing and improving how we work. We will acknowledge the receipt of your feedback/complaint and request any further information if required. RVA will respond to all messages marked ‘Feedback/Complaint’ and endeavour to do so within 10 business days. If we have not responded to your message after 10 business days, please resend your email in the event we did not receive your original message (e.g. due to technical issues).